A first of its kind registry for FTD Disorders.
Raising broader awareness on a virtually unknown yet debilitating brain disease that affects thousands of people while building support, community and scientific impact.Ready to Talk?
Results so Far
The registry launch greatly exceeded initial expectations by accelerating above 50% of a one-year target within the first month. Since launch, the community is newly emboldened to advance the science of care and treatment for persons affected by these rare diseases.
“We brought together an intersectional team of stakeholders and communities impacted by an FTD Disorder and leveraged key aspects of design thinking to build an engaging platform.”See it live
“We have gotten countless compliments on the appearance of the Registry website. Our registration numbers continue to grow approaching the 1st anniversary of the formal launch.”
- Dianna Wheaton Director, FTD Disorders Registry
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